hey hun, hope u dont mind me adding u as a friend?, just trying to meet lots of new people with simular/different stories. well im amanda, pleased to meet u! hope ur well, feel free to chat anytime xx
Hey Chris! Seriously, no questions are too personal for me. I hear you on the control thing. When I had UC, I was very fortunate to always be able to make it to the toilet, even if I had to BOLT. I have that same kind of luck now, actually. I have not ever had an accident with my j-pouch. Things have gotten a lot better for me, actually, and I have figured out patterns with when I go. At first when you have your takedown/reconnection, you might feel like you're spending your entire life on the toilet. I know I did. Then you start to notice you're spending only most of your life on the toilet, not all of it. It seriously starts to improve from there. I go from between 6 and 8 times a day.
There are some exercises you can do --- I think like anal sphincter muscle exercises.... I'm not sure. I never did, but I didn't need to. Everyone is different.
I'm sure they have given you lists of different kinds of foods to eat to "thicken things up?" Peanut butter, bananas, cheese, apple sauce, rice, pasta... this can help a lot, you'd be surprised. I also take 4 immodium a day, which has helped tremendously for nighttime trips to the bathroom. I normally only go once in the middle of the night. Sometimes I do not go at all, which definitely is always a reason to celebrate!!!!
You can do a little research on the internet about things that should help, you could ask your wound care nurse, doctor, and even Steve here on this site is genious about all of these things. My surgeon always told me that I needed to experiment with different things and figure out what worked for me and what didn't. You will want to try to figure these things out BEFORE your reconnection, trust me. If you're anything like me, you will also want to eat as many things as possible so you can gain weight.
Anyways - any other questions I can answer for you, just let me know.
Hey Chris, I'm glad you realized that those forums are for people who are having issues, cause I was so loopy and out of it when I read them, that I let all of my fears and anxieties escalate out of proportion. I spent the entire 9 weeks before my last surgery being terrified that it wasn't going to work. And then for about 5 weeks after the last surgery, I'd convinced myself that it wasn't working. I'm so glad you got support before the surgery, because I wasn't able to. I went into the hospital not knowing that was going to happen, just knowing that what they were doing wasn't working and I was so sick of being sick all the time. There is a 1/2 marathon for the CCFA in June in HI, and I'm hoping I might be able to run in it. I'm going to a meeting tomorrow night to get more info about it, only problem is that I am not sure if my body is strong enough yet to run a 1/2 marathon. I max out at 4 miles right now, it's all I can force myself to do. We'll see what happens :)
Hey Chris, how are you feeling? I hope things are getting a bit better for you everyday. It's been about 6 weeks since your colectomy? You said you're having your reconnection sometime in April. If you have any questions, don't hesitate to ask! Also check out this site: www.j-pouch.org
They have tons of information on there about j-pouches, and the people are also very helpful. Just don't read too much, you might freak out like I did when I started looking for possible problems!!!! Keep feeling better :)
Hey Chris! Yes, I'm sure you are feeling a bit crappy at the moment. It took me FOREVER to start feeling good! I had my reconnection in June of 2008, and I started to feel a ton better by the end of July. I'm thinking by the time summer comes along, you'll be feeling a lot better. I am absolutely thrilled with my progress, and wouldn't take back anything for a second!!!! Just make sure to make your toilet your throne... cause you'll be there quite a bit :) I always have a book in mine. I just finished Memoirs of a Geisha, read The Book of Lost Things and The Nanny Diaries--- all mostly on the toilet, haha. I'm currently reading Bridget Jones' Diary. I love the movie, the book is soooo funny!
Hang in there... in a few months, you'll be feeling great again!
Hi Chris!!! I had the same surgery as yourself when I was quite a lot younger. The Drs thought I had UC, so they did the whole J-Pouch thing...and then that got attacked, and they realized I had Crohns Disease. So...12 years ago, I got a bag for good. If you'd ever be interested in talking, hit me up! (^_^) Thanks...
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There are some exercises you can do --- I think like anal sphincter muscle exercises.... I'm not sure. I never did, but I didn't need to. Everyone is different.
I'm sure they have given you lists of different kinds of foods to eat to "thicken things up?" Peanut butter, bananas, cheese, apple sauce, rice, pasta... this can help a lot, you'd be surprised. I also take 4 immodium a day, which has helped tremendously for nighttime trips to the bathroom. I normally only go once in the middle of the night. Sometimes I do not go at all, which definitely is always a reason to celebrate!!!!
You can do a little research on the internet about things that should help, you could ask your wound care nurse, doctor, and even Steve here on this site is genious about all of these things. My surgeon always told me that I needed to experiment with different things and figure out what worked for me and what didn't. You will want to try to figure these things out BEFORE your reconnection, trust me. If you're anything like me, you will also want to eat as many things as possible so you can gain weight.
Anyways - any other questions I can answer for you, just let me know.
.
They have tons of information on there about j-pouches, and the people are also very helpful. Just don't read too much, you might freak out like I did when I started looking for possible problems!!!! Keep feeling better :)
Hang in there... in a few months, you'll be feeling great again!
i'm in the chat at the mo, come join in lol