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Fiona Hambling
- 37, Female
- Cambridge
- United Kingdom
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Fiona Hambling's Discussions
At last I can sleep on my frount!!
11 Replies
Started this discussion. Last reply by Tamara Sep. 27, 2009.
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Summer try OSTOSORB its a good one to get rid of those crappy smells....lol....x
Hi Julie
Glad it all went well...very brave!!! Well make sure u do rest plenty and I hope u soon heal...
Loads of Love xxxxxxxxx
You can also get a small sachet called "OSTOSORB" its a neutraliser pouch odour and it also absorb excess fluid..........ask your Stoma Nurse or if you have a company what deliver your bags etc.....xxxx
Profile Information
- Type of ostomy or internal pouch
- Illeostomy
- Gender
- Female
- About Me.
- Im 36 years old and a single mum of Jordan age 16. I was rushed into hospital June 08 with what I thought was just a bad case of the bug, my local doc had also said it was the bug go home and drink water!!! After a few days of tests and in awful pain they found out it was ulcerated colitis. I'v had my large bowel removed and have an illeostomy. Hoping to meet new friends who is going through the same as me!!
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Comment Wall (19 comments)
- At 12:48pm on February 1, 2010,
Steve O'Donnell said…
- Hi Fiona, How's you lass, not doing so good i guess judging by your question, hope everything is ok,
Diversion Colits is colitis(disease/inflammation) of the lower part of your colon that was left in place after the operation to have your ostomy formed, after your colon was snipped, the upper end of the snip was taken thro the abdomin to form your stoma, the lower end would have been stiched to your abdominal wall and left with a blood supply/nerves ect... surgeons often leave the anus, rectum and that section of colon intact, just incase a reversal or potential jpouch op can be done at a later date. It is colitis in this section of the, at present, non-functioning digestive system that is termed Diversion Colitis.
About a third of people who have all or a portion of their colon left in place after an ileostomy or colostomy, symptoms of diversion colitis may appear generally within 12 months post-op, ranging from passage of mucus from the rectum to rectal bleeding and pain.
There are treatments available for diversion colitis, i'm sure your doctor will run you through the best course, however some surgeon's will tend to re-attach the two seperated sections of colon if the reversal is due, for normally reversals (dunno about jpouches) often leads to diversion colitis symptoms clearing up.
Hope this was understable for you fiona, if you need any more info, just holler.x
- At 1:03am on October 27, 2009,
Tamara said…
- Hey Fiona,
I'm with you, I've been in two minds weather to have the reversal or not. My surgeon wants to do it early next year in two different operations. I don't particularly want to go back through everything, like i did both before & after my ileostomy op. Basically all my friends & family want me to go ahead with it, but the bag doesn't bother me. I haven't been this happy & healthy in years. In the end i guess we have to do what is best for us. Good luck & all the best. Tamara
- At 11:48am on October 13, 2009,
Steve O'Donnell said…
- P.s. i hate hospitals, welcome home Fiona.
- At 11:44am on October 13, 2009,
Steve O'Donnell said…
- The plasters that you see some ostomates wearing in the pictures are in fact coverings for continent ostomies/internal pouches Kock, BCIR, Indiana, Mitrofanoff ect.where one has to catheterise a stoma, as the reservoir and the stoma are constucted from a section of the bowel, the covering is prevent any mucous discarge from getting onto clothing.
As to where to get them from, go to your g.p and ask for them, generally any 8x7cm dressing that has an absorbent pad in the centre will suffice.
There are stoma caps you can get free from your ostomy privider. They are kinda small extra mini pouches that some folks wear for swimming or in the bedroom that are sutible to most folks that wear pouching systems.
Hope that helps.
- At 11:28pm on October 5, 2009,
ken said…
- hey all good mate after all its just your butt its normal i think all us ostomites are special as we choose when we go to a degree a kind wish to you ken
- At 5:10pm on October 5, 2009,
Steve O'Donnell said…
- Hi Fiona, you can pick up Chron’s & Colitis “Got Guts” bracelets from a host of different places online, 100% of proceeds go to the CCFA, purple in colour i think(correct me if i am wrong) i don't know if the NCCA in britain actually do them, but you can get one from the CCFA (their american equivilent). I think they are about $7.50 to buy.
Alternately there is a very good UK site called Wristbands online (http://wristbandsonline.co.uk/index.htm) that make all kinds of awarweness wristbands/charms, if you can't find the one you are looking for, then you can, through them, create your own.
There are also independent jewelery makers online that have created amazing bracelets, earring and charms ect especially for chron's and colitis awareness, if you type " chrons and colitis awareness bracelets" there are many sites to choose from.
Happy Hunting.x
- At 5:08am on October 5, 2009,
ken said…
- hi thats some great pics there,hope your well regards ken-shasi
- At 1:23pm on September 24, 2009,
matt taylor said… - Afternoon Fiona, so i went to see my surgeon yesterday and we talked about the reversal and he asked me if i had met someone with a good reversal and someone with a bad one, which i had not my stoma nurse just gave me a phone number of a guy that had a good reversal. so my surgeon would not take my word for wanting the surgery until i had a better understanding he also said that it is quite risky (more so risky than i originaly thought) so i am completely unsure now its like being in limbo!
how are you anyway? what is your status on the old reversal let me know take care, matt
- At 1:46pm on September 3, 2009,
matt taylor said…
- Hi Fiona long time no chat good to hear your well again. i am also going to see my surgeon this month and talking about the reversal. i had my entire large intestine removed and my nurse and surgeon say its quite normal to do a reversal in this state????
obviously i dont know the full story i just thought that was kind of well, not an odd way to be.
anyway good that your being active
cheers, matt
- At 10:00am on August 26, 2009,
Fiona Hambling said…
- At last im back and well. I'v had a few bad months of being low and alot of pain etc...but all is well now!!!.....gutted I could'nt walk Ben Nevis but hoping to be there next year!!....I'v started swimming again and yoga and also the new american craze...the vibration board!!!.....
Since I'v been on these awful steriods I'v put on loads of weight and I'm determind to loose this chubba before xmas......
I hav just recently moved to Cambridge as my son is going to college there...I'v got back into work as a florist at Addenbrookes Hospital which I really enjoy but its an eye opener when you see how some people are really ill...it makes you feel realise that having a stoma is nothing really!!!
On the 14th Sept I going back to my surgeon to see if he has decided to do a reversal....but from what I'v been told but my new local doc...it would be a long and hard operation as they hav taken so much of my large bowel!! Well hope you are all keeping ok...looking forward to having a chat with some of you soon!!!!!....x
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